A Voice for Those With Disabilities

I received this letter from Joe Miller who is one of the great champions in our area for those with disabilities. When Brooke and I found out that Holland would be born with disabilities Joe was the first person to contact us to help us figure everything out. Joe has a young daughter named Tessi who also has Down syndrome. Please read the information below and act to help!  This bill is so important to children with disabilities.  For most of them, this will be the only opportunity for their families to put money aside without losing their most needed benefits.  So what can you do?  Call your US Senators and US Represented and urge them to pass the ABLE Act of 2013 in November.  Your voice does matter!  Finally, Send this to your friends that you feel will act on behalf of Holland Burleson, Tessie Miller, and all the children who need your help.  Click this link to find out how to contact the people of congress. http://www.congressmerge.com/onlinedb/index.htm

Holland and Tessi at Hollands Birthday Party

Thank you,

Adam Burleson

and the rest of the Run For Holland Board

The Achieving a Better Life Experience (ABLE) Act of 2013 (S. 313/H.R.647) was introduced in the 113th Congress by a bipartisan, bicameral set of Congressional Champions including Sens. Robert Casey, Jr., (D-PA) and Richard Burr (R-NC), and Reps. Ander Crenshaw (R-FL), Chris Van Hollen (D-MD), Cathy McMorris Rodgers (R-WA), and Pete Sessions (R-TX).

The ABLE Act would amend Section 529 of the Internal Revenue Service Code of 1986 to create tax-free savings accounts for individuals with disabilities. The bill aims to ease financial strains faced by individuals with disabilities by making tax-free savings accounts available to cover qualified expenses such as education, housing, and transportation. The bill would supplement, but not supplant, benefits provided through private insurances, the Medicaid program, the supplemental security income program, the beneficiary’s employment, and other sources.

An ABLE account could fund a variety of essential expenses for individuals, including medical and dental care, education, community based supports, employment training, assistive technology, housing, and transportation. The ABLE Act provides individuals with disabilities the same types of flexible savings tools that all other Americans have through college savings accounts, health savings accounts, and individual retirement accounts. The legislation also contains Medicaid fraud protection against abuse and a Medicaid pay-back provision when the beneficiary passes away. It will eliminate barriers to work and saving by preventing dollars saved through ABLE accounts from counting against an individual’s eligibility for any federal benefits program.

– See more at: http://www.ndss.org/Advocacy/Legislative-Agenda/Creating-an-Economic-Future-for-Individuals-with-Down-Syndrome/Achieving-a-Better-of-Life-Experience-ABLE-Act/#sthash.HBScgeIJ.dpuf

       

Recent Posts

 
Becoming A Non Profit
The Paperwork has been sent for Run For Holland Foundation to become it’s own Non Profit Organization. We are excited for this update as it will allow us to grow even more and meet even more needs of our disabled community!
Registration is now open for the 2016 Run for Holland 5K and 10K! You can register this year at https://runsignup.com/runforholland10k5k. The earlier you sign up the more money you save. The new date is May 14th 2016. Pushing the race back two weeks will give us more likelihood of warmer weather as well as less competing
Mayland’s Life Skills Class/Career College would like to announce their Annual Talent Show! Friday, April 24th 10:00 am in Sam Center Auditorium Everyone is welcome!
Rob Nance at Spoon
  Spoon Spruce Pine and Run For Holland race organizers are proud to present Rob Nance, and his brother Jordan for a live music performance on Saturday, April 25 at Spoon Bar in Spruce Pine, NC. Partnering with Spoon, a portion of sales on April 25th from both Spoon and Knife & Fork will be donated
Congressman Mark Meadows discusses Support for ABLE Act
Watch Congressman Mark Meadows discusses Support for ABLE Act on the House Floor on C-SPAN! Thank you so much Congressman Meadows for your support for the ABLE Act and also to the Run For Holland.
The 1st ever WCC Turkey Trot was a great success! Below are links to the results: Overall Results Age Group Results

Thank You!

 

Welcome to the Run For Holland 5K for Down syndrome awareness! Presented by Spruce Pine Lions Club.

Thank you! On behalf of the Spruce Pine Lions Club and the Run For Holland board of directors, thank you. Thank you for all the support, love, and encouragement that has been given to us through planning this fantastic race. It is our hope that with you all we can grow this event into more than just a 5K race that happens once a year. We want the Run For Holland idea to spread through our community like wildfire and give families and individuals the love and support they deserve.

Recent Posts

 

Contact Info

 

If you have any questions about how to register, volunteering or any other questions, please contact Race Organizer...Adam Burleson.

Phone:    (828) 385-2341
Email:    burleson.adam@gmail.com
Race Location: Riverside Park 200 E Tappan St Spruce Pine , NC 28777

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